Hi all, it has been a few weeks since I have had a chance to put out a post. Over the past few weeks we have been dealing with the ongoing process of getting into our new routine. Visiting with all of our new doctors here in Ct. We have been very fortunate to have connected with a great group of doctors that are energized to help Jared and be part of his ongoing care.
Over the past few weeks Jared has had an ever increasing amount of muscle spasms or toning as one of his PT therapists called it. As it turns he had a stone in his bladder that looked to be about 1.5cm from the ultrasound. This stone in anyone of us would have been very uncomfortable to say the least. For Jared as he does not have the normal sensations that we all have it became a source of disroflexia. This in turn increased the frequency and severity of his UTI’s as well. So he has been dealing with a number of issues that are all related to this stone.
Jared was scheduled for surgery on Thursday to remove the stone but as his UTI was so severe he had to go into the ER and get a few days of IV antibiotics before the would operate. So today the infection was much better and they performed the procedure to remove the stone. When they actually went in to break up the stone and remove it they found that it wasn’t a stone at all. What happened was during his earlier stay in the hospital he had a foley catheter installed. The small bulb that is inflated at the end of the foley tube to keep it in his bladder ended up habing crystals form around the outside of it making a small cast of crystals. Once the bulb was deflated and removed the small cast remained behind which looked like a stone in the ultrasound. Fortunately when the doctors went to remove the stone they found that it was just a cast. This is much easier to break up and remove. Also it means that Jared is not making stones in his bladder and he should not have to worry about any coming back in the future.
We are just now getting released and should be back home in a few hours.